Category: Updates

Ilai went to heaven on January 1, 2021 at 6:00 pm. He went peacefully in our arms and surrounded by our love.

Keep him, like us, forever in your hearts so that he will not be forgotten.

So that he can continue to inspire and move so many people with his being and remain a role model for us all.

Wherever he went, he spread love. That is why his path does not matter. Because his love will always be everywhere, no matter where he goes.

He was the one who gave us the strength during that time. He always went ahead, and we behind him. Even now, He will give us the strength to follow Him someday.

Although he didn't have much time, he was still able to show so many people what is important in life.

Health and the love between parents and their children. Never give up, no matter how hard the road. Because nothing is stronger than love for each other.

He leaves a hole in our soul that no one is able to fill. Nevertheless, we accept the pain, because our son is worth feeling it for.

Thank you to all who accompanied Ilai and us during this difficult time.

Forever our little super hero.

Hello dear ones,

seit dem letzten Update hier auf der Homepage ist einige Zeit vergangen und wir haben viele traurige, aber auch einige schöne Momente mit Ilai erlebt.

Alle Ereignisse der letzten Wochen wiederzugeben wäre zu viel des Guten. Daher versuchen wir Euch das wichtigste in Kürze zu berichten:

Hello dear ones,

please excuse the big gap between our updates, unfortunately it was again a turbulent time. If you want to learn more between the single updates, please have a look at our new Instagram account: @ilaiguthgermany

In order to find a beginning and make it more comprehensible, we summarize the events as chronologically as possible for you:

Ilai was admitted to the intensive care unit for a total of 38 days due to his serious condition. During this time he received two cycles of chemotherapy and was subsequently discharged!

The result of the last reassessment showed a significant improvement in facial bone lesions. However, the tumor behind the right eye remained almost unchanged, so that he will start radiotherapy on Thursday, September 3rd.

Nach 38 Tagen im Krankenhaus, einer fünfseitigen durchgeführten Medikamentenliste, mehreren Bluttransfusionen und glaube sechs Narkosen sind wir endlich seit Donnerstagabend wieder daheim.

Der Chemoblock ist fertig und Ilai hat mittlerweile seinen neuen Katheter bekommen, welche aber wahrscheinlich nicht sehr lange halten wird. Die Vene, welche sie benutzt/gefunden haben, ist sehr dünn und somit die Funktionsdauer des Katheters eher limitiert.

The last update was a while ago and this has several reasons. For one, I didn't have the time or head to sit down and write something in peace, as I spent the precious little time I had in worry or with my son

On Monday, Ilai had another brief bout of mild bacteremia, which was immediately treated with medication. I think he is rid of this one now.

Because of this, the catheter must unfortunately still be removed on occasion. But the doctors would like to finish this block.

Actually I always wanted to make only short updates but this is a bit difficult at the moment because too much happens.

Saturday Ilai woke up with a swollen eye because the tumor is pressing on the eye from behind.